Went to see Dr. Kabbani today we will be decreasing Grace's ACTH, it will take 4 weeks to taper her off of it. If we go to fast her body could go into shock. After that it will take Grace 2 to 4 weeks for her immune system to come back. Kabbani is concerned with the thrush and how it is progressing and wants us to see out pediatrician once again and see if we can get some medication to treat the large amount of eczema on her forehead. Kabbani can not prescribe this as he is just our neurologist (I think it is a conspiracy) but her would call and professionally advise the substitute pediatrician that something else needs to be done and offer recommendations. We like our neurologist!
Grace's blood pressure was very high we are going to double her blood pressure medication.
We are also starting Grace on Keppra another seizure medication it will take three days and half dosages before we can giver her a full dosage.
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