We got tuned down about a two weeks ago for nursing care for Grace. It's really annoying when multiple doctors say with confidence, she gets a G-tube and you will get nursing hours the next day. We were denied because Grace's care is considered custodial, but then again any infant care really is custodial.
Fortunately Dale is in for the long haul, which we may need.
Hopefully they new state legislature will get to work right away and spent part of the 300 million surplus on programs we need and not giving tax breaks! If they could just clean up the waiting list for the waiver program (Medicare) we would be able to get funding for some additional services that will be crucial as Grace gets older. If you have some free time please feel free to write your state senator or representative (http://www.legis.state.ia.us/FindLeg/). Currently we are on a 12 to 18 month waiting list for the ill and handicap waiver and at least a 24 month for the brain injury waiver. We ultimately want to get on the brain injury waiver as this will provide some specialized services for Grace's condition.
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