Grace's fever broke last night, our Epileptologist spoke with our Endocrinologist in Des Moines this morning and they decided to keep her at the triple dose of Hydro-cortisone for the day and possibly the next day, she will have no problem resuming the tapper of the Hydro-cortisone after we get over this little hurdle.
She has taken 2 - 4 oz bottles already today, she had a 1/3 of an ounce left in the second bottle so they put it through her tube. The idea now is to feed everything by bottle and what she does not take we tube. So if this works we will not need to run the pump at night anymore. We may need to run the pump during the day at times depending on how much she won't take by bottle; we need to shoot for an over the day amount.
They did X-rays this morning to make sure everything was OK and to help rule out any internal issues as to why she had the fever. Her white count went up last night after she got the Hydro cortisone. They are going to keep her on the Iv antibiotic and give her Tylenol and ibuprofen in rotation to keep her temp normal and to help prevent any further infection.
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thanks for the updates kevin. iv antibiotics should really help and she will feel alot better. dont go home too soon. take care . you're in our thoughts and prayers. knew you'd be an awesome dad. such a caring guy. becky/rick elsenpeter
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