Today went well for Grace. No seizures all today, so the Febetol must be doing something. Granted this could also be the honeymoon affect that we have experienced on many other meds.
Grace had no Tylenol today and she does not appear to be in pain, she was awake a great deal more and sitting up well and holding her head up really well.
We are completely off of Topamax now the really bitter tasting medicine that Grace was taking.
Dr. Doescher really wants to "clean" Grace up with the number of meds she is currently on, I would suspect by the time we return (if we need to return) to start the ketogenic diet that she will be on only two or three anticonvulsants and maybe Prilosec, we may even be able to eliminate that one as well. Who knows time will only tell?
Most likely looking at being discharged by Sunday.
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