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Monday, June 12, 2006

Email Update 6/12

(This is an email sent out while at Children's Hosptial.)

We have good news! Grace DOES NOT have the very rare and life threatening form of Epilepsy called Aicardi Syndrome. We just got back from the Eye Doctor and are waiting for Dr. Ritter the Pediatric Epilepsy specialist we came here to see, he is busy until 4pm so we are hoping that we will be able to see him as soon as he gets back. Hopefully he will have a diagnosis and treatment plan that we can begin.

It is sounding like we may be able to go home today. Grace has had two seizures today, she had one on the way back from the Eye Doctor, but it was much lighter than her normal ones. Not sure if this means the medicine she is on is working or what.

We will let you know more as we find things out.

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