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Tuesday, June 27, 2006

Week 3

We went to see Dr. Kabbani this morning and we were ready to take Grace off of the ACTH, we saw a little reduction but not much in the seizures. however we left with the plan of increasing her to double the amount we started giving her to go for one more week. Kabbani has had a patient in the past that did not react to the ACTH until they got to this high of a dosage, so it may just be a dosage thing. We are also going to increase her klonopin (other seizure medication she is on). I think this is an attempt to treat the seizures as nothing is really happening so far, but the good thing is that klonopin is a muscle relaxer so it will counteract the steroid. I can't imagine Grace on only the steroid.

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