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Tuesday, June 20, 2006

Increased Steroid Use

We went back to Dr. Kabbani after a week of being on ACTH. Unfortunately there was not a significant decrease in seizures so we will be increasing her dosage by 50% for the next week. We will know in two weeks of starting ACTH if this drug will work for Grace. We feel like it is our fault that Grace is not getting any better. Since we give her the drug and that is all we can do we feel like we are failing her. We have to increase her Prilosec to double the amount, the insurance company didn't like it at first but it is preventive so she does not develop stomach ulcers which is yet another side effect of the ACTH. Grace's blood pressure is high so we have to start her on a blood pressure medication as well.

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