We've Moved!

Grace's Blog has moved to: http://www.hooverspad.com

Tuesday, June 13, 2006

Treatment

We met today with Dr. Kabani and we will be starting Grace on a drug called ACTH which is a steroid. This drug has the most promise in treating infantile spasms and can essentially wipe out the seizure she is having. There are lots of side effects of the steroid including weight gain, irritability, and a weakened immune system. We won't be able to take Grace anywhere with her weakened immune system not grocery shopping, daycare, church, no where except to doctor appointments.

We have been told that ACTH is the same drug that pilots were given in WWII to make the more awake and agitated. And we are giving this to a baby?

Grace is already on another seizure medication that they started her on while in the hospital called Clonapin will will keep her on this for awhile as she needs some drug therapy to until the the ACTH builds up in her system.

No comments: